Donalty case featured in Science Magazine

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Donalty case featured in Science Magazine

CHICAGO, IL - Citizens United for Research in Epilepsy (CURE) announced the establishment of a new epilepsy research
program focused on Sudden Unexplained Death in Epilepsy (SUDEP).

Every year, it is estimated that up to 50,000 deaths occur in the United States from seizure-related causes including SUDEP. There is an urgent need for more research to determine underlying mechanisms and causes of SUDEP so that the risk may be minimized and eventually eliminated.

In its decade-long history, CURE has funded multiple researchers studying SUDEP. However, this year marks the start of the first SUDEP targeted research program. This program will award seed grants to researchers submitting innovative proposals that will provide new directions for SUDEP research.

This award is being established and named to honor the memory of Christopher Donalty (October 27, 1980-February 21, 2002) and Kyle Coggins (December 15, 1981-May 13, 2003), who died from SUDEP.

Christopher's mother and CURE Board member Jeanne Donalty was featured in the July 4, 2008 Science magazine article, "When Death Strikes Without Warning," where she sheds essential light on the devastating effects of SUDEP and the need for increased awareness. The article discusses the historical lack of SUDEP research, and how grieving families like the Donaltys have helped drive a recent increase in both discussion and study of the problem.

Jeanne and Judge Barry Donalty host a huge fundraiser every other year in Utica to raise funds for epilepsy research.

For more information on CURE, or if you would like to interview the Donatly family, please contact Michelle Marciniak or visit www.CUREepilepsy.org.

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Tuesday, Aug 5 at 7:21 PM alice wrote ...

being a former Utican, my son was diagnosed with epilepsy in 2005. i have never seen him have a seizure, that i know of and that is what's scary, not knowing what is going to happen from day to day. he has been seizure free for 3 years now but you wonder from day to day when the next bomb will drop

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Thursday, Jul 17 at 10:52 AM Parent of a child wrote ...

I have a child age 21 with epilepsy diagnosed at age 6. I am also a nurse and had no idea about SUDEP. Fortunately for us we were blessed with an ooutstanding neurologist. She has had my son under wonderful control for years and has just recently discontinued his last antiseizure medication. No seizures!!! I am truly blessed. I do, however feel that every parent that has a child with epilepsy has to be told about SUDEP before it's too late which was Chris' case.

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Wednesday, Jul 16 at 11:29 PM sal wrote ...

the donalty's are very special people,keep up the good work.may god bless you.

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