Our son, pictured in the red bib, is a 17 year old with multiple handicaps, who suffers from dysautonomia. To date, 41 hospitals, including Albany, GoLisano Childrens,RMMH,St Elizabeths, Rush Med Center, BMCH, UTMC, and Vanderbilt Med Center, have turned us down, most saying that they are not "credentialed" to care for patients with this many conditions. We are Desperate to find medical care for our child, before this condition shortens or claims his life. We need help...desperately....and by posting this, I am praying that someone will be able to help him..and us! Our son has fragile x syndrome, is non verbal, has chronic OCD ,acute anxiety disorder, partial/complex seizures, poor circulation, POTS,and fine/gross motor delay. He cannot walk talk bathe feed or dress himself since contracting dysautonomia...when we stand him for any length of time, his hands turn grey,and his feet purple...we are truly desperate to find a doctor willing to take our child's case.
disabled child denied medical treatment
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